For an initial visit in our Adult CF Center, please plan to be here for about 2 hours. The initial visit will include an appointment with one of the CF care providers, pulmonary function testing, and meeting with ancillary providers on our care team. This may include meeting with a dietitian, a respiratory therapist, a physical therapist, a social worker or a pharmacist. A new patient will not necessarily meet with the entire care team on the first visit, but should expect that they will see each of our supporting providers on at least an annual basis. All patients will be asked to provide a sputum sample and may also require laboratory testing or x-rays. We ask that you arrive 30 minutes prior to your scheduled appointment to do lung function testing.
We expect that most of our adult patients will be transitioning from a pediatric CF program or transferring from another adult CF center. If you are transferring your care from outside of the IU Health System, we ask that you provide a referral and a copy of your recent medical records. Specific information that is particularly helpful at an initial visit includes information about your CF diagnosis (genotype and/or sweat chloride test results), copies of recent imaging, and recent clinical notes, including pulmonary function testing, microbiology, and laboratory testing. This information can be faxed or mailed to us prior to your clinic visit and is often facilitated by your prior care center. If you have any questions about this process, please contact our nurse coordinator Jana Yeley, NP, at 317-948-3267 or firstname.lastname@example.org .
Occasionally, a patient will present in adulthood for consideration of a new diagnosis of CF. Again, any prior testing and outside records will be very important for the visit. Additional testing may be required, including sweat chloride testing which is performed at the Riley Outpatient Center. If you require additional testing, your visit will be longer and plan to be here for 3-4 hours.
Follow Up Visits
In accordance with the recommendation of the CF Foundation, we ask our patients to return for visits at least every three months, but if you are ill, we may need to see you more frequently than this. At every visit, we will ask you to produce a sputum culture and perform pulmonary function testing. If you are unable to produce a sputum culture, a nurse will swab the back of the throat to obtain your culture. We ask that you arrive 30 minutes prior to your scheduled appointment time to perform pulmonary function testing. On an annual basis, blood will be drawn to obtain a variety of recommended laboratory testing (hyperlink to either a pdf or webpage with recommended care guidelines), and we will perform a chest x-ray every one to two years. Some testing may occur more often if clinically indicated. On at least an annual basis, you should meet with each member of the care team, including a social worker, a dietitian, a respiratory therapist, a physical therapist, and a pharmacist. You may meet with these individuals more often at your request or if clinically indicated.